I would like to share with you what it is like in the day of My  infusion days.Today i am going to Texas Children's Hospital to receive  my IVIG ( thats antibodies a blood product that helps me)and it's going to be great. 

My mom wakes me up around 630 am.Im a little groggy but i gather my activities Go Bag, Teal fuzzy peace blanket, and my  Tomcat . On the way there in rush hour traffic I get all cozy and sleep until my mom pulls into vallet. We head up to the 9th floor to immunology treatment center. Mrs Tenesha,my nurse, greets me with big smile and hug. Then  a big sigh, to dump all my things into a chair to get my weight, height and vitals. I bebop to the back treatment rooms to wait for the pokey IV to be done( This doesnt hurt me though I've been doing it since i was 1). Mrs. Tenesha gets all set up and puts in my ivy.She used to be the volcano lady that got blood everywhere but now she's all better. I start digging thru my things to do while my  bolus(extra fluids) are going for the 1st hour of 6-7. Mrs Tenesha and Mrs Valerie both monitor me over time. They start the antibodies ( they are cells i dont produce  that fight off infection) and watch over me. 

Some things i like to do while im recieving my antibodies infusion are crafts, play with friends going thru the same thing,boardgames , rainbow loom and visit with my mom. I most tmes get tired and wiped out from the medicineand doze off to sleep. At the end for the last hour  i get another bolus ( or fluids) to dilute the effects of the antibodies. This helps me because I usually have a reaction with throwing up and severe migraine. 

 I have the best 2 nurses Tanisha and Valerie. I did great doing my ivy. I am still at the hospital getting my antibodies. Today Mrs tenesha made me a flower out of medicine caps. She is wonderful. Another a person i like to see is Ms lyndsey because she checks on me and has all the fun stuff for maddison and i to occupy our time.

Yay Im  going to be all better for the month. I am blessed Thanks God for great care! SCOOOOOORE!

See ya'll in te summer. I am so excited because I get to come and  see all of yall. YIPEE ;-) ;-)

It's freezing in TEXAS!!!!!!

January 29,2014. Today it's like a big popsicle that we'er living in. Texans aren't use to having 28 degree weather maybe to you Ohioans our whether is semi warm.  Well this will make you laugh!!! I went to the car and tried to open the door to get my math out,but there was ice in the crack of the door. I couldn't get my book out of the car. Yesterday my friends and I all had a snow day and it didn't even snow!!! Isn't that crazy???  Jan. 28 my friend Jessica (from gymnastics) came over and did smash booking with me. Smash booking is like scrapbooking but with washi tape and pics and memories that you did. It s so fun!!!!!!

New Friend Blessings....



CARE FROM THE BEST

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  Why Ohio? This why we are here......            

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Nice Nicole 2

Last  time   i was    here      for   a long   time    I     went    to    justice   to      look   around.

She    was    so   sweet      and  nice.  Today      we   were out      and   about     with  our  car   for   9$ and  went    by  justice.    I    was        so   excited      to      see    her.   when  we walked   in    Nicole  was the first   person I  saw.        I    looked  at   outfits   with  her   and   tried   them  on     for  her   and     my   mom.   she    makes   me    feel    special.    She always  visits with   us    and  she    remembered    us  too.  

A Day with Mr David